✨Just 1 more day! ✨Registration for both sessions of Camp Footprint opens tomorrow! Get ready to secure your spot at cmtausa.org/campfootprint Please contact Camp Director and National Youth Programs Manager Jonah Berger at jonah@cmtausa.org, or Assistant Camp Manager Laurel Richardson at laurel@cmtausa.org if you come across any questions. #CMT #CharcotMarieTooth #CMTAYouth #CMTAFamily #CMTCommunity #CMTStrong #CMTAwareness #CampFootprint #YouthEmpoweringYouth
Charcot-Marie-Tooth Association
Non-profit Organization Management
Glenolden, Pennsylvania 2,762 followers
Our vision... a world without CMT!
About us
Our mission … to support the development of new treatments for CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. Our vision … a world without CMT. About CMT: Named after the three doctors who first described it in 1886: Charcot, Marie, and Tooth, CMT affects one in every 2,500 people—a rare disease subdivided into multiple subtypes, each with a lower prevalence. Due to the degradation of their nerves, people with CMT suffer lifelong progressive muscle weakness and atrophy of the arms and legs, and can affect other parts of the body. This leads to problems with balance, walking, hand use, and more. There currently is no treatment or cure for this debilitating disease. About CMTA: The CMTA is a community-led, community-driven 501(c)(3) nonprofit organization with a mission to support the development of new treatments for CMT, to improve the quality of life for people with CMT, and, ultimately, to find a cure. As the leading global philanthropic funder of CMT research, the CMTA unites the community with clinicians and industry experts to accelerate the advancement of treatments, with investments of more than $24 million since 2008. For more information, visit the CMTA's website.
- Website
-
http://www.cmtausa.org
External link for Charcot-Marie-Tooth Association
- Industry
- Non-profit Organization Management
- Company size
- 11-50 employees
- Headquarters
- Glenolden, Pennsylvania
- Type
- Nonprofit
- Founded
- 1983
Locations
-
Primary
Glenolden, Pennsylvania 19036, US
-
PO BOX 105
Glenolden, Pennsylvania 19036, US
Employees at Charcot-Marie-Tooth Association
Updates
-
⏳The wait is almost over! Registration for Camp Footprint opens in just 2 days! Don't miss your chance to be part of an unforgettable experience🌟 Register on Sunday, January 5th at cmtausa.org/campfootprint #CMT #CharcotMarieTooth #CMTAYouth #CMTAFamily #CMTCommunity #CMTStrong #CMTAwareness #CampFootprint #YouthEmpoweringYouth
-
⚠️Attention all CMT Youth ages 10 to 18 AND interested CMTA Counselors (ages 19+)... Camp Footprint 2025 registration opens in just 3 days!⚠️ Register on Sunday, January 5th at cmtausa.org/campfootprint #CMT #CharcotMarieTooth #CMTAYouth #CMTAFamily #CMTCommunity #CMTStrong #CMTAwareness #CampFootprint #YouthEmpoweringYouth
-
Only 4 days until Camp Footprint 2025 registration opens! Spots are available on a first-come, first-served basis, so don't delay⛺👣 Register on Sunday, January 5th at cmtausa.org/campfootprint #CMT #CharcotMarieTooth #CMTAYouth #CMTAFamily #CMTCommunity #CMTStrong #CMTAwareness #CampFootprint #YouthEmpoweringYouth
-
Ringing in the New Year with hope and strength! Here's some of our community members' resolutions for 2025🎉💛 Have a #HappyNewYear ! #CMT #CharcotMarieTooth #CMTCommunity #CMTAwareness #CMTAFamily #CMTStrong #Resolutions
-
+3
-
The Charcot-Marie-Tooth Association (CMTA) is excited to announce its 🌟NEW🌟 branch location in Palm Beach County, Florida. The branch will be led by Ilene Meckley. Ilene Meckley was diagnosed with CMT1A on January 20, 2024. She did not realize that some of the challenges she was experiencing were a result of CMT. Ilene is now learning more and more and is eager to share her experiences and learn from others. With over 30 years of experience as a motivational speaker and trainer, Ilene always aims to inspire others. Ilene believes that community is vital, and she is dedicated to supporting and encouraging others through her efforts in Palm Beach and Broward County, ensuring everyone receives the help they need. To find your local branch, visit www.cmtausa.org/branch #CMT #CMTAFamily #CharcotMarieTooth #CMTStrong #CMTDisease #LetsBeatCMT
-
The Charcot-Marie-Tooth Association (CMTA) is excited to announce its 🌟NEW🌟 branch location in Eastern Canada. The branch will be led by Traci Williams. Traci Williams has long been involved in the disability community, whether serving on hospital committees, giving yoga courses to teens in wheelchairs at a rehabilitation hospital, teaching Chronic Disease and Chronic Pain Self-Management at a hospital or mentoring people with CMT. Traci hopes the Eastern Canada branch to be a place of support and information for people with CMT and/or their caregivers in Ontario, Quebec, New Brunswick, Nova Scotia, PEI, and Newfoundland/Labrador. To find your local branch, visit www.cmtausa.org/branch #CMT #CMTAFamily #CharcotMarieTooth #CMTStrong #CMTDisease #LetsBeatCMT
-
The Charcot-Marie-Tooth Association (CMTA) is excited to announce its 🌟NEW🌟 branch location in Springfield, Missouri. The branch will be led by Jayne. Jayne is the Springfield, MO Branch Leader. She is dedicated to raising awareness by connecting with others and engaging in meaningful conversations. She is also passionate about fundraising to support clinical research, aiming to find a treatment and cure for this debilitating disease. After attending the 2024 CMT Summit, where she met others like herself for the first time, was a deeply emotional and empowering experience. Jayne is committed to making a lasting impact within the CMT community and helping others who face similar challenges. To find your local branch, visit www.cmtausa.org/branch #CMT #CMTAFamily #CharcotMarieTooth #CMTStrong #CMTDisease #LetsBeatCMT
-
The Charcot-Marie-Tooth Association (CMTA) is excited to announce its 🌟NEW🌟 branch location in South Louisiana. The branch will be led by Jessica Simeon and Sonia Daniels. Jessica Simeon and Sonia Daniels are excited to announce the reopening of the South Louisiana branch. Sonia loves to solo travel, create art, and always makes time for a daily walk. Jessica enjoys reviewing perfumes and body care products, reading suspense novels, walking in the park, and spending time with family and friends. They are looking forward to reviving the branch, sharing local resources, and finding new CMT friends! To find your local branch, visit www.cmtausa.org/branch #CMT #CMTAFamily #CharcotMarieTooth #CMTStrong #CMTDisease #LetsBeatCMT
-
Every breakthrough starts with one act of kindness. Your one-time gift to CMTA helps fuel research and resources for the CMT community. Make a gift today: cmtausa.org/waystogive #CMT #CharcotMarieTooth #CMTAwareness #CMTAFamily #CMTStrong #LetsBeatCMT