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This Giving Tuesday, join NCARD in our mission to address one of Australia's most challenging health crises. Australia has one of the highest rates of #mesothelioma in the world, with 700-800 people diagnosed each year. In 2022 alone, 685 Australians lost their lives to this devastating disease, with healthcare costs of $33.7 million. Behind each statistic is a family facing one of the most aggressive forms of cancer, a community impacted, and a story that drives our dedication to advancing treatments. At NCARD, our researchers are committed to improving patient survival through groundbreaking research. But we can't do this vital work alone. Your support on Giving Tuesday can help accelerate our research and bring hope to families affected by asbestos-related diseases. Your donation, no matter the size, contributes directly to: 1. Pioneering new treatment approaches 2. Advancing early detection methods 3. Supporting clinical trials that could save lives 4. Improving quality of life for patients Make your Giving Tuesday count by supporting our work: https://lnkd.in/gwaGNXMc Every donation brings us one step closer to better treatments and improved survival. This Giving Tuesday, be part of the solution. #GivingTuesday #NCARDresearch #ResearchMatters #MesotheliomaResearch

Dr. Ruth Browne - CEO, RMHNY addresses the effects of social determinants of health in the fight against childhood cancer. The nature of childhood cancer and other debilitating diseases is that sometimes you have to travel to get the care you need. Sometimes, the specialist with the know-how to deal with your child’s situation is not in your home town and in some cases like ours, your country. Because nobody budgets for cancer, the family now needs help to be able to survive while their child gets the care they need. And that is where organizations like the Ronald McDonald charities come in. We belive we speak for all families who have been through a Ronald McDonald House that what they do cannot be put in a video of 3 minutes but we can say for sure that for us, Ronald McDonald House New York is an inspiration in how to assist the medical community to provide a more holistic care to children with cancer - from shelter, to food, to transportation, to providing social events for the children, a playroom, computer, self-care events for parents and guardians and so much more. We commend donors and philanthropists who make services like these possible for families in their darkest times. Remember there is always something YOU can do to help. Ask us how! (Full video on our Facebook page) #childhoodcancerawareness #RMHNY #childhoodcancer #gogold #socialdeterminantsofhealth #akanimocancerfoundation #becausechildrengetcancertoo

🌟 National Minority Donor Awareness Week August 1st-7th🌟 At Sunflower Home Health Care Services, we believe in the power of giving and the strength of our communities. This week, we join the nation in raising awareness about the critical need for minority organ, eye, and tissue donors. 🫶🏽💛 Organ donation can save lives and make a profound difference, but there is a significant gap in the availability of donors within minority communities. By becoming a donor, you have the potential to bring hope and healing to those in need. ✨ Why It Matters: -Minority patients often wait longer for transplants. -Genetic matches are more likely within the same ethnic group. -A single donor can save up to 8 lives and enhance many more through tissue donation. Let's come together to spread awareness, encourage conversations, and inspire action. Register to be a donor, and be a beacon of hope. 🌻💙 #SunflowerCares #MinorityDonorAwareness #DonateLife #CommunityStrength #Save #SunflowerHHCS

🌟 National Minority Donor Awareness Week August 1st-7th🌟 At Sunflower Home Health Care Services, we believe in the power of giving and the strength of our communities. This week, we join the nation in raising awareness about the critical need for minority organ, eye, and tissue donors. 🫶🏽💛 Organ donation can save lives and make a profound difference, but there is a significant gap in the availability of donors within minority communities. By becoming a donor, you have the potential to bring hope and healing to those in need. ✨ Why It Matters: -Minority patients often wait longer for transplants. -Genetic matches are more likely within the same ethnic group. -A single donor can save up to 8 lives and enhance many more through tissue donation. Let's come together to spread awareness, encourage conversations, and inspire action. Register to be a donor, and be a beacon of hope. 🌻💙 #SunflowerCares #MinorityDonorAwareness #DonateLife #CommunityStrength #Save #SunflowerHHCS

National Minority Donor Awareness Day Today, we honor and celebrate National Minority Donor Awareness Day! This important day is dedicated to raising awareness about the critical need for organ, eye, and tissue donors within minority communities. Did you know that minorities make up a significant portion of those waiting for life-saving transplants? By increasing donor registrations among minorities, we can help improve transplant success rates and reduce waiting times for patients from these communities. Why is this important? Health Disparities: Minority communities often face higher rates of conditions like diabetes and hypertension, which can lead to organ failure. Matching: Successful transplants often require matching donors and recipients from similar ethnic backgrounds. Saving Lives: One donor can save up to 8 lives and enhance the lives of over 75 people through organ and tissue donation. Let’s come together to spread the word and encourage more people to register as donors. Your decision to donate can make a world of difference. 🌍💖 #NationalMinorityDonorAwarenessDay #DonateLife #SaveLives #StandUpSpeakOut #OrganDonation

The Impact of Your Support! Reflecting on all that Cure ADSSL1 has achieved in the past two years fills me with immense gratitude for YOU—our extraordinary community. None of this progress would have been possible without your support. When we started, we only knew of two children in the world with this rare disease diagnosis—our own. Today, through dedicated awareness efforts, we’ve connected with patients in India, Korea, Japan, China, Turkey, Kenya, the UK, Germany, and the USA. In just two years, Cure ADSSL1 has achieved great progress: ✅ Launched research in 7 global institutes where none existed before. ✅ Developed 3 disease models where there were none. ✅ Allocated 100% of the funds raised directly to advancing research and developing treatments. ✅ Hosted our inaugural scientific conference with 50+ clinicians and researchers, establishing a global research consortium. ✅ Supported the publication of 4 research studies by our collaborators. ✅ Connected patients and families worldwide, providing a supportive community. ✅ Honored to receive the prestigious Chan Zuckerberg Rare As One grant for capacity building. This Season of Giving, you can help ensure that Cure ADSSL1 continues to make a difference. Your support powers every step forward. Will you join us in this journey? Donate today and share our story. Let's keep the momentum going for our incredible community! 👉 Double your impact! Many employers offer matching contributions for charitable donations. Use your employer's donation platform and search for our organization name (Cure ADSSL1) or our EIN/Tax ID (88-1577647) to maximize your contribution. 💙 Prefer to donate directly? You can do so using the link below: https://lnkd.in/gsXBpCnq #CureADSSL1 #ADSSL1 #givingtuesday

🚵♂️ Meet one of our returning Team CHIbra's riders: Dr. Diva D. De León-Crutchlow! Diva is one of the foremost congenital hyperinsulinism experts in the world - she is the Director of the Congenital Hyperinsulinism Center at Children's Hospital of Philadelphia, a CHI Center of Excellence, and is the Lead Clinician of the CHI Collaborative Research Network. You can support Dr. De León-Crutchlow's fundraiser for HI research on her page: https://lnkd.in/ebB-qhbn 🚲️ The Million Dollar Bike Ride is on June 8 in Philadelphia, PA, and for the 11th year, we are raising funds for congenital hyperinsulinism research! ‼️ If you are interested in riding, you must register by June 2nd (see details on our website) ‼️ 💙 The University of Pennsylvania will match the first $30,000 of our donations. CHI is raising funds to address the critical need for research for diagnostic tests to increase timely diagnosis of HI, tools for better management, new treatments, and, one day, a cure. #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia | Hyperinsulinism | Congenital | HI | Hypoglycemia | Rare Disease

The Patient Journey for those with hypothalamic hamartomas often begins before an official diagnosis has been received and extends well beyond the point of having treatment. Our website provides resources for each stage of the Patient Journey: 1. Could It Be HH? - https://lnkd.in/g7FUxkif 2. Newly Diagnosed - https://lnkd.in/gTchCebK 3. Going For Treatment - https://lnkd.in/gDfrVdFM 4. Living with HH - https://lnkd.in/gk9_Ttzy 5. Adults with HH - https://lnkd.in/g-s5yrif Please consider donating today to help fund research and patient programs. + Give through our GiveButter campaign - https://lnkd.in/gTRmqHJ7 +Give through our website - https://lnkd.in/gGfrFFHE #HHawareness #InternationalHHAwareness #ChooseHOPE #FightingForRare #StrongerTogether #HopeForHH #ShareYourStory #YourStoryMatters #Give #Hope #HypothalamicHamartoma #braintumor #gelastic #seizures #obesity #rages #RareDisease #ChronicDisease #Epilepsy #Seizures

#huntingtonsdisease Part 13 As I have said in previous posts, I have been #raisingawareness of #huntingtonsdisease throughout Australia (and some globally) for the past couple of years or so, through talking of my family's experience with Huntington's disease. I have been going alone with this so I could be free to research and work without restrictions from any organisations or persons. I needed to speak for those I have lost to this disease. Raise awareness of this disease for my family. Educate those who knew nothing or little of the disease, and encourage existing families with the disease to not make the same mistakes as previous generations in ignoring it as best they can, seriously consider testing and to think of longer term consequences in any decision. Huntington's disease has no cure. It is genetic, rare, a neurological disease which all children born to a parent/parents who are at risk, tested positive or diagnosed with having inherited the disease, are also at risk, with a 50% chance of inheriting it. That is a very big percentage. In my research, I have learned how families are still struggling with the knowledge and diagnosis of this disease. I have learned of the still intact secrecy within the family unit. In other words, the stigma of yesteryear is still there today, and while some families are making changes in hope it will end in present generation, there are many who continue just hoping that cure will be found soon. What I am now asking for, is help in the way of raising money for further research into Huntington's disease. I am asking #you, if you can possibly consider making a donation towards this cruel disease, it would be very much appreciated. I am supplying a link here, which will take you directly to the website to make donations. You will need to specify you want your money to go to Huntington's disease research, to ensure it goes to that. You will be asked for your name and contact details for taxable purposes. And, If you like, you can make the donation on my behalf. Huntington's Disease Network of Australia (HDNA) have provided me with this link, and I personally, have made a donation to ensure it all goes through as I wanted it to. So, I know it will do for you. I am not in a habit of asking people to make a donation, but this is important to me. As I have said in a previous post, I am not a movie star or a celebrity, so I am unable to reach the people as they can, to gain bigger audiences in hope of big donations, but I hope I can make some kind of impression this way. I have approached government in any way I could. Basically, I have possibly made a nuisance of myself, because my family suffered. I have suffered. And I do not want future generations to suffer as we have, and all other families presently dealing with this disease. With thanks, Kathy Langley https://lnkd.in/gjuRs4NF DONATION LINK