EverythingALS’ Post

I just had the unfortunate opportunity to watch Donate Life America latest video—a piece so appallingly tone-deaf that it left me feeling truly repulsed. Seeing it for the first time, I’m struck by how anyone could think this was the right way to promote organ donation. It doesn’t inspire hope or compassion. It alienates. It disgusts. This is among the worst examples of “awareness” propaganda I’ve ever seen. The leadership at Donate Life America—G. David Fleming, Alexandra Glazier Jennifer Milton George Herrera, Ronda Horstman, and others—should seriously question their judgment. This video reflects a staggering lack of empathy for patients, donors, and families, and a profound misunderstanding of real advocacy. Instead of honoring the life-saving power of organ donation, this video makes a mockery of it, leaving viewers feeling disconnected and disheartened. It’s shocking that these leaders, tasked with representing such a crucial cause, would approve a campaign this careless and offensive. This isn’t just an oversight; it’s a grotesque failure of judgment. They should feel deep shame, not pride, for this crude attempt at awareness that serves only to embarrass and alienate the very community they claim to support. If Donate Life America truly understood their mission, they’d focus on respectful ways to engage the public—ways that honor the journeys of donors, patients, and families. Publicly calling this out is necessary to prevent another massive misstep. What they’ve produced here doesn’t just miss the mark; it’s a black stain on their reputation, showing a disturbing detachment from the cause they’re supposed to champion. 💔 How This Alienates Patients and Recipients:    •   Tone-deaf portrayal    •   Absurd stereotypes    •   Insulting narrative    •   Mockery of experiences    •   Disconnection from reality 💔 How It Damages Public Perception:    •   Turns off potential donors    •   Discourages families    •   Reinforces harmful myths    •   Shows lack of empathy    •   Undermines trust 💔 How It Shows Leadership’s Failure:    •   Neglect of community    •   Outdated tactics    •   Detached priorities    •   Careless approval    •   No accountability Donate Life America, if this is the best you can offer, it’s time to step back and reassess. Real awareness demands integrity, respect, and understanding—not the cheap shock value of a poorly conceived video campaign.

2014 Ice Bucket Challenge -- 2024 Ice Bucket Challenge 2014: 17 million films. 159 countries. 10 billion views. 220 million dollars raised. What an amazing impact. And now, flash forward 10 years, never before have we seen so many people involved in the fight against the disease: researchers, clinicians and healthcare professionals, advocates and legislators, volunteers, and donors. We’ve seen major advancements in research, advocacy, and care that have impacted the ALS community, BUT our work is far from over. * We need new treatments. * We need more care. * We need better care. * We need more awareness. Be a part of the 10 year anniversary of the Ice Bucket Challenge! Donate today: https://lnkd.in/gzP5VTQX #FightALS #ALS #WhateverItTakes #alsawareness #makingadifference  #caregivers #familysupport #charity #bethedifference #DefeatALS #Awareness #ALSAwarenessMonth #IceBucketChallenge #ALSicebucketchallenge

The MDS Foundation is committed to ensuring global consistency in the understanding and treatment of MDS. 🌍 Each year, we bring together leading MDS experts from around the world to discuss the latest advancements and challenges in MDS care. These key discussions are then summarized and shared with patients and caregivers, helping to ensure that everyone stays informed on critical updates in research, treatment, and care strategies. Together, we are shaping the future of MDS care and improving lives. In honor of World MDS Awareness Day, let's continue to spread awareness and support those impacted by MDS. Help us make a difference by donating today: https://mdsdonate.org #MDSJourney #MDSTreatment #ClinicalTrials #MDSSupport #ClinicalResearch

1 in 700 children are born with a cleft lip and palate. May 4th-12th is Cleft Lip and Palate Awareness Week and we are joining with @clapacommunity based out of the UK to share our story. Face the Future Foundation Board member Rena Rosen was born with a Cleft Lip and Palate and shares an excerpt of what she spoke about at our Glitter and Gold event back in November. She says, “When children or young adults are looked at and identified by textbook examples of Craniofacial anomalies needing to be fixed, we miss out on the full human being. Each person enters into medical spaces with their own story, their own experiences, and their own trauma. It is our job as at Face the Future Foundation to staunchly support CFC so that they can do their incredible work of creating that safe space where each individual feels respected, included in every step of discussion and feels as their unique experiences are valid.” Every face tells a story, what’s yours? [Image Description: photo of Rena as an infant smiling, on a yellow background with black text beside the image.] @cfc.uih #fffcraniocare #craniofacialawareness #charity #nonprofit #nonprofitorganizations #donate #volunteer #activism #philanthropy #charitableorganization #fundraising #socialgood #changemakers #joinus #jointhefuture #cleftlip #awareness #childrenscharity #craniofacial #cleftlipandpalate #cleftlipandpalateawareness

A meaningful reflection on the power of Giving Tuesday! The fight against Alzheimer’s is something that touches so many lives, and your personal connection makes your support even more powerful. It's inspiring to see Cross Country take action in partnership with the Alzheimer’s Association® to support both research and those directly affected by this disease. Small actions truly can make a big impact, and this is a perfect example of how collective efforts drive change. The progress in Alzheimer’s research is critical, and it's encouraging to see companies like yours take initiative. How can we, as individuals or organizations, further amplify the impact of Giving Tuesday in other areas of healthcare and support? #GivingTuesday #EndAlz #AlzheimersAwareness

Maadhyam's Blood Donation Drive: A Collective Effort for a Healthier Tomorrow! At Maadhyam, our commitment to empowering communities through collective action shone brightly during our recent blood donation drive. This event was not just about donating blood; it was about coming together to make a tangible difference in the lives of those in need. Our passionate colleagues, the true heroes, drove the initiative, embodying the spirit of unity and compassion. Their selfless contributions have brought us one step closer to our goal of building healthier, stronger communities. Together, we have proven that when we unite for a common cause, we can achieve incredible things. Let us continue to spread awareness and support initiatives like this in the future, ensuring that our collective efforts continue to empower and uplift those around us. #MaadhyamBloodDrive #BloodDonation #EmpoweringCommunities #MedExpertBilling #MedExpertCares #MedExpertMaadhyam #CSR #CommunityEngagement #SocialImpact #Community #Sustainability #MakeADifference #SocialResponsibility #ChangeMakers #MedExpertImpact #SustainableImpact #EmpowermentMatters #SocialGood #BetterFuture #PurposeDriven #BuildingCommunities #MedExpert #Maadhyam #SocialImpact #CommunitySupport #FutureGoals #CorporateResponsibility #JoinTheJourney Hiresh Sasi Jigar Panchal Thirumalai Narayanan Rajinikanth Dhakshanamurthi

Empower girls, transform the world. Together, we can break barriers, champion education, and inspire change. 🌟 Donate today and make a difference! 💖 #Kaysha #EmpowerHer #EmpowerHer #GirlsEducation #SupportChange #KayshaMission #DonateForGood #EducationForAll #EqualityMatters #InspireChange #SupportGirls #BreakingBarriers #kaysha #kayshaorg [Empowerment, girls’ education, donate, inspire change, community support, equality, break barriers, champion education, nonprofit, make a difference]

By uniting with patient groups globally, we can amplify our voices and work together towards empowering those affected by atopic eczema. Through organizing, advocating, and sharing our stories, we can shed light on the multi-dimensional impacts of the disease and strive for better care and support. Raising awareness for atopic eczema is essential in challenging misconceptions and ensuring that patients' needs are met with understanding and empathy. By coming together on September 14th, we can foster a supportive community that advocates for improved care and treatment reflective of the challenges faced by patients and caregivers. Together, we can make a meaningful difference in raising awareness, promoting understanding, and advocating for better care for atopic eczema. https://buff.ly/3VmGXmn #acommunityforthosewithskinconditions #volunteer #causes #donate #change #activism #nonprofit #dogood #charity #fundraising #philanthropy #socialgood #madeamasterpiece #+perspective #skinconditions #communityforskinconditions #yourenotalone #yourskinisacanvas #extrodinary #diseases

Hey everyone! This #GivingTuesday, I wanted to share a bit about the work I've been doing with The American Institute of Dental Public Health (AIDPH), and what donating to us via our Givebutter page (https://lnkd.in/eUT5XG8B) means for us as an organization. AIDPH was founded with the belief that everyone deserves access to dental healthcare. Oral status has far-reaching impacts on overall physical and mental health - but marginalized communities often face overwhelming barriers to accessing treatment. To bridge the gap, AIDPH produces research on pressing issues in dental health, advocates for an improved dental health landscape, and educates dental professionals, policymakers, advovacy groups, and beyond on how we can work together to make sure the system serves *every* American. I've supported communications outreach for a number of exciting initiatives since I've joined the team, including: - A study on the state of dental care for adults with intellectual and developmental disabilities in Tennessee with Harmony Health - A report and summit for stakeholders in Iowa to create a roadmap for addressing veteran dental disparities with Delta Dental of Iowa - A webinar series exploring issues related to oral health in rural communities - Our third annual LGBTQIA+ Oral Health Week campaign - Our annual Colloquium conference, which brings stakeholders across the country to share and learn from each other's research, work, and expertise And lots more! Especially for a small nonprofit, securing donations for operations - the day-to-day, non-program-specific duties that keep an organization like ours running - can be quite the challenge. As we make our foray into fundraising, sending any gift this holiday season, whether it's $10 or $100, will help us continue in our vision of a justice-based oral health system at a time when disinformation is rampant, and funding for necessary healthcare infrastructure is increasingly under threat. Thank you for coming to my Ted Talk! Feel free to ask me any questions about the work we do, and give today (https://lnkd.in/eUT5XG8B) to make a stand that dental healthcare is a human right, not a privilege.

Really powerful conversation between Harpreet Matharu and Meena about organ donation in the South Asian culture and also about the importance of representation and the value of diversity in our Organ Donation Nursing teams. Let’s keep this conversation going across LinkedIn. Regardless of ethnicity, culture, religion, age or gender, let’s get talking about organ donation!